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Previous newsletters
June 3, 2022
Nashville Calling 🎸 Scientific Meeting & Family Connect 📆 December 1&2
April 27, 2022
📣 Praxis announces SYNGAP1 Program. #Sprint4Syngap is Saturday. Webinar tomorrow.
February 28, 2022
February 28, 2022 - Happy #RareDiseaseDay!
December 1, 2021
Are you joining us on Friday for the 3rd Roundtable?
November 3, 2021
See you at the webinar tomorrow? 3rd Annual Roundtable in one month! So much more. What a month!
October 1, 2021
F78.A1 is live, there are 883 patients, the Medical Considerations document is live and #UFDcure is next week
September 2, 2021
Wow, we are making great progress! -Webinars, ICD-10, Gala, Fundraisers, Podcasts, Connections, and so much more!
July 1, 2021
The #SyngapCensus 2Q21: 808 worldwide! - ICD-10 Code - Research Awards - Studies - Events - Interviews - Caren's Birthday - And So Much More!
April 15, 2021
Five things you need to know today, April 15, 2021
March 4, 2021
We launched the Sprint4Syngap, Ahituv and Yeme webinar as well as new designs in the store
February 16, 2021
Praxis just partnered with Ciitizen! Have you seen the Caren Movie Trailer?
February 2, 2021
Frazier Press Release. Also, four invitations and an article on VUS mutations
November 23, 2020
Five things SynGAP families & professionals need to know this week.
November 2, 2020
Are you ready for the webinars this week & the SRF Roundtable on December 4? See two new movies & support our new #SRFCoba fundraiser. Lots more.
October 3, 2020
SYNGAP Weekend Read - Roundtable, ASOs, Ciitizen, Census, Webinars...
August 1, 2020
Happy #RNADay! #SRFHeller Webinar. Merch, Masks & a Podcast!
July 8, 2020
Epigenetics Grant, #SynGAPCensus = 600, Masks, Webinars & Movies
June 17, 2020
SRF Webinar Series Starts tomorrow! #Splash4Syngap in 4 days!
May 29, 2020
#Splash4SynGAP is coming 6.21 & other SRF news!
April 8, 2020
Two invitations for you, COVID-19 info, #SyngapCensus & more
March 6, 2020
SynGAP: SRF Advocacy, Organoids, & more...
January 14, 2020
Syngap Research Fund presents its first official newsletter!
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