Donate Registry

Previous newsletters

February 28, 2023

Newsletter #29 - Rare Disease Day Special Issue

February 14, 2023

Newsletter #28 - 2023 Will Be Epic! How Can You Help?

January 2, 2023

SRF - 2022 Highlights, Year-end News, & We're Growing!

December 22, 2022

Newsletter Issue #26 - Two Days in Nashville

November 15, 2022

October 20, 2022

5 ways to jump into #SYNGAP1 advocacy this year, starting with the Cannonball tomorrow!

July 29, 2022

🇨🇦 🇺🇸 🇦🇺 🇪🇺 🇦🇹 Announcing two global collaboration grants for SYNGAP1 #BowieID #CourtneyMissense

June 3, 2022

Nashville Calling 🎸 Scientific Meeting & Family Connect 📆 December 1&2

April 27, 2022

📣 Praxis announces SYNGAP1 Program. #Sprint4Syngap is Saturday. Webinar tomorrow.

February 28, 2022

February 28, 2022 - Happy #RareDiseaseDay!

December 1, 2021

Are you joining us on Friday for the 3rd Roundtable?

November 3, 2021

See you at the webinar tomorrow? 3rd Annual Roundtable in one month! So much more. What a month!

October 1, 2021

F78.A1 is live, there are 883 patients, the Medical Considerations document is live and #UFDcure is next week

September 2, 2021

Wow, we are making great progress! -Webinars, ICD-10, Gala, Fundraisers, Podcasts, Connections, and so much more!

July 1, 2021

The #SyngapCensus 2Q21: 808 worldwide! - ICD-10 Code - Research Awards - Studies - Events - Interviews - Caren's Birthday - And So Much More!

April 15, 2021

Five things you need to know today, April 15, 2021

March 4, 2021

We launched the Sprint4Syngap, Ahituv and Yeme webinar as well as new designs in the store

February 16, 2021

Praxis just partnered with Ciitizen! Have you seen the Caren Movie Trailer?

February 2, 2021

Frazier Press Release. Also, four invitations and an article on VUS mutations

November 23, 2020

Five things SynGAP families & professionals need to know this week.

November 2, 2020

Are you ready for the webinars this week & the SRF Roundtable on December 4? See two new movies & support our new #SRFCoba fundraiser. Lots more.

October 3, 2020

SYNGAP Weekend Read - Roundtable, ASOs, Ciitizen, Census, Webinars...

August 1, 2020

Happy #RNADay! #SRFHeller Webinar. Merch, Masks & a Podcast!

July 8, 2020

Epigenetics Grant, #SynGAPCensus = 600, Masks, Webinars & Movies

June 17, 2020

SRF Webinar Series Starts tomorrow! #Splash4Syngap in 4 days!

May 29, 2020

#Splash4SynGAP is coming 6.21 & other SRF news!

April 8, 2020

Two invitations for you, COVID-19 info, #SyngapCensus & more

March 6, 2020

SynGAP: SRF Advocacy, Organoids, & more...

January 14, 2020

Syngap Research Fund presents its first official newsletter!

© Copyright 2018-2023 Syngap Research Fund | All Rights Reserved |