Share Your Story

To help spread awareness of SYNGAP1 syndrome it is important for SRF to share patient stories through a variety of methods. This includes bringing a face to the disease through photos and videos on our website, social media, brochures and other promotional materials. If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please complete the form below. Any questions on photo and video usage may be directed SRF's managing director, Mike Graglia.