101 - SRF | 2021 by the Numbers

SRF 2021: The year in review by the numbers

Listen to Mike’s latest podcast running down these numbers and view the numbers spreadsheet.

• ‍$1.8M committed to SYNGAP1 Research via 13 different grants to 10 institutions.
• 75k+ following @cureSYNGAP1 on 6 social media channels. 
• ‍985 Patients counted in 58 countries.
• 154 US patients enrolled in Ciitizen.
• 143 Wednesday Warriors profiled on our site.
• 95 blog posts to update families.
• 52 Webinars in 3 languages on our website.
• 41 Episodes of our Weekly Podcast updating families.
• 17 Families currently or previously represented on our Board of Directors.
• 12 US or UK umbrella organizations joined to ensure SYNGAP1 is at the table.
• 10 Scientists and clinicians on our Scientific Advisory Board.
• 10 iPSC cell lines funded in two biobanks, +1 at Baylor we funded, +3 at Simons, +8 with Coba, +2 Penn, +1 at Cornell.
• 5 Patient movies on our site, including the award-winning Celebrating Caren. 
• 5 Studies recruited for with Ciitizen, Kennedy Kreiger, Duke University, University of Toronto, and John Carroll University.
• 4 Roundtables Complete - 3 at AES & 1 en Espanol: 1st syngap.fund/rt1; 2nd: syngap.fund/rt2; 3rd: syngap.fund/rt; Espanol: syngap.fund/cc1.‍
• 3 Discrete organizations formed: SRF US, SRF UK & Fondo Syngap.
• 1 ICD-10 Code secured from US CDC. Working on an ICD-11 from WHO.
• Zero donor dollars spent on overhead costs as they are all covered by our Founders. 

Happy 2022! 

Thank you for a great year and all your support. We can’t wait to see what the future holds for all our Syngapians and SRF!