New Jersey, USA
3 years old
December 25, 2019


Gracyn was diagnosed June 10, 2019 with Syngap1 and diagnosed with epilepsy in August 16, 2019. She turned 3 on September 25, 2019. She has global delays, mostly in speech, intellectual disability, sensory issues, epilepsy, hypotonia, and behavioral issues. Gracyn suffers from atonic (drop) seizures.

She has been in the Early Intervention program since 15 months and now goes to a preschool geared to those with special needs. Our family is happy to finally have a diagnosis. We love our Gracyn with all our hearts!

- Rachel, Mom

We Need Your Help

We can use your help to raise awareness about SynGAP1.

© Copyright  2018-2023 Syngap Research Fund  | All Rights Reserved | 
Privacy Policy