Ann Arbor, Michigan
5 years old
July 21, 2021


After 3 years of searching for answers, Rowan was diagnosed with Syngap1 in May of 2021. He had his first seizure thanksgiving of 2019, 2nd seizure 1/27/20 and has maintained no seizures with keppra! Rowan loves witches, going on family trips, Putt putt and he loves to swim. He has been to 20 states! He has a feeding tube (since just before 2yrs old) but is eating more and more everyday. His favorite food is tater tots, chips and chicken nuggets. His speech is still limited but definitely emerging and getting his point across. Some challenges would be transitioning between activities, brushing his teeth, and being told no. Rowan is becoming a big brother in August!

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