Patient Support Team

Jen Cook - Virginia and Surrounding States

After years of searching for what was Making Jen’s daughter different from her sisters, her and her husband finally got the news in May of 2018 that their daughter, Harper, had a Syngap1 gene mutation. Soon after, in July 2018, came the epilepsy diagnosis. As difficult as this has been on their family, they have found ways to become apart of this very special community of parents fighting to find treatments for their children. Harper is beautiful 3 years old little girl and has a smile that lights up the room!

Jen and John Cook have 4 wonderful children and live in Virginia. Jen is a realtor part time and mom full time. She became apart of the Syngap Research Fund in hopes of helping with fundraising and also helping newly diagnosed families navigate this journey.

Jen recently launched a syngap clothing and accessory line called “The Tiny Rare Ones” which has partnered with the Syngap Research Fund to help raise awareness and funds to find treatments. Check out her website at


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